MRDS - Malaysia Rare Disease Disorder

Hello Malaysia... Guess what, a week ago I was called to meet up with parents with SMA children thru MRDS gathering today. It's unfortunate that only 2 existing members are known to form a group support for SMA.

So I just pulled myself and joined the gathering.. Finally I found a foot path to activate our glorious dream of having Malaysia SMA support team as one have in UK, US and Australia.

I would want people especially those who has big role in this nation to be aware the needs of minority group of SMA family in receiving the best possible care..

A lot to write but I'm short of time currently, till the next post... ;D